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The results of this showed that I had Hepato-pulmonary
shunting syndrome type A, a degenerative disease of
the liver that was causing my blood vessels to close
down and gradually starve the liver of blood. New blood
vessels were being formed but these were by-passing
my lungs and going back to my heart with deoxygenated
blood and slowly but surely I was gradually being starved
of true oxygenated blood throughout my body.
My hepatology consultant sat me down on more than one
occasion and advised that my situation was not going
to be resolved by drugs and told me that liver transplant
was my only chance of survival. He wrote to King's College
Hospital, London.
Three months later I attended assessment tests and
after two weeks was given the choice to have a transplant.
Even though all the lead-up to this point had taken
well over two years, the time given to contemplate such
an operation was very short.
Two years if I am lucky was their prognosis. I guess
they and my GP and partner & friends had made my
mind up for me!
My new liver became available by a phone call to me
at ten minutes to midnight on my birthday, one present
I did not expect that day. I was transplanted the next
day at 11.30 am.
My recovery was fraught with many complications which
resulted in me being in hospital for three months and
then discharged but listed on the re-transplant list
as they were unsure if this liver would be capable of
doing its job.
Now three years on and no re-transplant, I am doing
very well. I have total admiration for all the staff
at King's for their persistence and expertise. Huge
thanks for all my loved ones for their unrelenting support
and kindness. The biggest thanks go to my donor's family
for their unselfish act and the wishes of their daughter
to give life after her death. Without these acts of
kindness many of us would not be here today.
I have much to pass on but if I had just one piece
of advise I can give following my experience, it would
be
.BE AN ORGAN DONOR!
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